SEEK: Salford Environment for Expertise and Knowledge

Journal Article (Refereed)
June 2017

Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study

Manskow, U & Cpsych, O & Roe, C & Braine, M & Audny, A & Damsgard, E 2017, 'Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study ', Neurorehabilitation, 40(2), pp.211-222.

Abstract

Abstract: OBJECTIVE: To assess burden and life satisfaction in family members of patients with severe traumatic brain injury (sTBI) at 1 and 2 years post-injury, examine if change in burden can be predicted by family member and patient demographics, patient’s functional status, family members social network or level of burden at 1 year. METHODS: Prospective national multicenter study. Self-report from family members, patient data collected from a national cohort study on patients with sTBI. 80 family members participated. MAIN OUTCOME MEASURE: The Caregiver Burden Scale (CBS), life satisfaction. RESULTS: Total burden increased between years 1 and 2 post-injury (P  = 0.04). Thirty percent of the family members reported an increased burden, 55% were stable, and 15% had a decrease in burden between the two follow-up times. Logistic regression analyses revealed that experiencing loneliness was an independent predictor of increased burden from 1 to 2 years post-injury (OR = 4.35, P  < 0.05). Life Satisfaction was lower at the 2 year follow-up than at 1 year (p  = 0.03). CONCLUSIONS: The results demonstrate a need for long-term follow-up of patients and family members that focuses on professional support to relieve burden and risk of loneliness or social isolation. This group may benefit from additional follow-up interventions tailored to their needs.

Authors

SEEK Members

External Authors

Oddgeir Cpsych

Unn Manskow

Elin Damsgard

Cecilie Roe

Anke Audny

Publication Details

Journal Name
Neurorehabilitation

Volume
40(2)

Pagination
211-222.