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Journal Article (Refereed)
July 2012

Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: a cross-sectional study

Al-Gamal, E & Long, T 2012, 'Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: a cross-sectional study', Scandinavian Journal of Caring Sciences, 27(3), pp.624-631.

Abstract

Background

Cerebral palsy, with a prevalence in Europe of 2-2.5 per 1000 live births, is the most common severe physical disability affecting children. Caring for a child with disability is exhausting and stressful, and social support is an important coping resource. There is little evidence about how having a child with cerebral palsy affects Jordanian parents and how such parents respond.

 
Aim
The purpose of this study was to provide insight into the psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy.
 
Method
In 2010, A cross sectional, descriptive, correlational design was used with a non-probability sample of 204 Jordanian parents. Both mothers and fathers, interviewed individually rather than in pairs, were recruited from health care centres that provided comprehensive care for children with cerebral palsy in Jordan and from designated schools for special education. TheGross Motor Function Classification System (GMFCS), the Perceived Stress Scale (PSS), the Beck Depression Inventory (BDI), the Strengths and Difficulties Questionnaire (SDQ) and the Multidimensional Scale of Perceived Social Support (MSPSS) were administered to parents. Descriptive statistical analysis was applied. Bivariate correlation analysis was undertaken to examine the relationship between variables.
 
Results
More than 60% of parents often felt nervous and stressed. The mean score on the PSS was 27.0 (SD=9.33) and the mean score on the MSPSS was 58.9 (SD=15.1). Severe disability in the child was associated with high mental distress in the parent and linked to low support from friends. There was a significant negative correlation between parental stress, depression and social support. Parents with the most psychological distress were the least-well supported.
 
Conclusion
This study has implications for health professionals in terms of developing strategies for reducing parental stress. There are implications for policy to provide support for parents and to develop family-centred services. The findings will inform an intervention study to investigate multi-professional support.

Authors

SEEK Members

External Authors

Ekhlas Al-Gamal

Publication Details

Journal Name
Scandinavian Journal of Caring Sciences

Volume
27(3)

Pagination
624-631.